Want to contribute to the discussion about the sharing and re-use of medical research data?

We are currently organizing discussion game sessions online and face to face.


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Learn how to explore your research data.

No need to wait until a statistician or bioinformatician is available. First explore your data to find out what is most interesting.

Join our eTRIKS labs webinar series & learn about:

- Visualizations that allow you to explore even the most complex datasets in minutes

- Tools to help speed up data integration

- An approach to making the process of working with complex datasets much simpler

- An innovative discussion 'game' for engaging patients on the value of data


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consortium

eTRIKS is supporting 27 projects

and we want to support 40 by the end of 2017

Training4

We have trained over 300 researchers

Find out more about training opportunities

laboratory3

We make data curation faster and data exploration easier

Help us create new tools in eTRIKS Labs

"eTRIKS provides the gel, without which we would be floating in excess pools of data."

Ian Adcock - U-BIOPRED Work Package 6 leader

Slide Background 3

eTRIKS Standards Starter Pack is in use broadly throughout the IMI

Get the eTRIKS starter pack here

New Standards Starter Pack v1.1 released


Updated with new guidance on:

- FDA guidelines for devices and instruments

- Using LOINC and UCUM in regulatory submissions

- Pharmacogenetics standards from CDISC


New eTRIKS LAB established -

HiDome

Create patient cohorts by setting constraints on components in high dimensional data sets.


Integrated and explorable data are valuable data!

Show your commitment to responsible management of medical research data


Portfolio of Resources

eTRIKS Training

eTRIKS Training
Training on the use of the eTRIKS platform to all supported partners.

Standards starter pack

Standards starter pack
Data harmonisation begins with standards.

eTRIKS Public Platform

eTRIKS Public Platform
Explore public datasets and see the eTRIKS platform in action.

Code of practice

Code of practice
Uncertain about what you can and cannot do with medical research data?




Case Studies

  • Client
    U-BIOPRED
    Date
    September 3, 2015
    Website
    View website
    Analysis pipelines for very rich data sets The Challenge OncoTrack is looking at deep data sets for cancer patients to discover new markers for Colon Cancer. The goal of OncoTrack is to identify and characterize biomarkers that will help our understanding of the variable make-up of tumours and how this affects the way patients respond to treatment. This can be used to guide appropriate therapy choices for each individual patient. The data sets created are extremely rich containing clinical data, animal xenograft data and a wide range of genomic information including GWAS and NGS. Already hundreds of terabytes of data […]
  • Client
    U-BIOPRED
    Date
    September 4, 2015
    Website
    View website
    Comparing clinical data across multiple disease areas The Challenge Biopharmaceuticals provide a valuable new approach to disease management. But a significant limitation in their use is the development of anti-drug antibodies (ADA) in some patients. The development of ADA is seen to some extent across all diseases and with all treatments, but the individual data sets for any single disease and treatment have usually been small. ABIRISK seeks to bring these data sets together to understand the common underlying causes of ADA. To do this, disparate data sets from multiple disease areas and many different institutions need to be analysed […]
  • Client
    U-BIOPRED
    Date
    September 1, 2015
    Website
    View website
    Unbiased comparison of data sets The Challenge Severe Asthma is often difficult to manage and many patients are unresponsive to treatment. Furthermore, it is thought that there are many different phenotypes of asthma that are not properly understood. U-BIOPRED aims to create ‘handprints’ that identify sub-phenotypes of asthma. The handprints can then be used to better understand the disease and lead to better targeted treatments for the individual. U-BIOPRED handprints include a wealth of diverse data on each patient and the researchers need to compare and combine them in an unbiased environment. This will permit identification of a wide range […]


Blog

October 18, 2016
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Bartha Knoppers – Complex ethical and legal questions on data use are increasingly pertinent.

When Darwins theories of evolution were substantiated by Mendel and Correns society found itself having to rapidly adapt to bioethical questions posed by these advances. Should we be tampering with nature? Can we choose the type of community we have? Earthquake moments kept coming; the discovery of chromosomes, genetic modification and recent advances in information technology, data storage and analysis. We are forced to ask questions on data privacy, security and sharing against a background of ever expanding data availability. Informatics and analytical technologies allow us to explore the link between our genes and disease on an industrial scale. Vast […]
May 6, 2016
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Chris Marshall – Hacking through the thorny challenge of establishing project-to-project support and data sharing agreements.

The IMI (Innovative Medicines Initiative) drive large public private partnerships (PPPs) to work collaboratively towards the development of new and effective medicines. IMI PPPs such as U-BIOPRED, ABIRISK and OncoTrack produce vast amounts of data that with the right management will enable development of new therapeutic approaches for diseases such as cancer and asthma. However to do this, PPP data has to be shared. Intellectual Property matters Data in its various forms need to be formatted, shipped and stored to enable analysts to get the best they can out of it. This requires specialist help that compel owners to share […]